Huntington’s disease care
Exceptional Huntington’s disease care
We believe that through a compassionate and person-centred approach we can help individuals living with Huntington’s disease to rebuild their lives and strengthen social relationships.
Being diagnosed with Huntington’s disease (HD) could come with a huge distress and astonishment. As a degenerative and incurable condition, Huntington disease can present mental, physical, social and psychological challenges for those who have been diagnosed and their relatives. This could mean constantly readapting your lifestyle as the symptoms progress over time. This is why Verity Healthcare is here to provide extra support for you or your loved ones to receive additional support at home in order to deal with these changes. Remaining in familiar surroundings, amongst loved ones and home comforts, is an exceptional way to positively cope with the challenges of Huntington’s disease and remain as comfortably and independently as possible.
We draw on many years’ experience of supporting people living with Huntington’s disease, to purpose-design and fully-accessible homecare services that’s tailored to your needs or that of your loved one. We work with individuals and families to create relaxed settings and atmosphere that provides the perfect place to receive award-winning care and support from highly trained, friendly and expert care staff and nurses.
Our services go far beyond traditional homecare and provide effective and evidence-based care through our close working relationship with other healthcare professionals like physiotherapist, GPs and speech therapist. We’re committed to providing the best standards of care that meets your needs, interest and preferences.
As a result of this, we implement care services that are holistic in nature so you have a wide range of choices to live the way you want. We work to match you with the right care worker who shares your interests and your lifestyle. We’re passionate about giving people living with Huntington’s disease the same opportunities and adventure as an able-bodied person.
We’re here to help you to manage Huntington’s disease if you have been diagnosed or manage any symptoms that could underline the disease.
What is Huntington’s disease?
Huntington’s disease (HD) is a degenerative disease and a hereditary disorder that damages certain nerve cells in the brain and affects the person’s central nervous system. In 97% of cases the condition is caused by a hereditary faulty gene of the chromosomes. However, in approximately 3 % of the cases there is no family history of the disease. There are often physical, cognitive, behavioural and emotional changes within a person as Huntington’s disease progresses. Men and women are equally affected by the illness.
Symptoms of Huntington’s disease
Despite of the fact that symptoms usually begin to surface during adulthood, 5 – 10% of people with HD develop it before the age of 20 – this is termed Juvenile Huntington’s disease. Recent research has uncovered that around 12 per 100,000 people are affected by the condition. The symptoms can also differ from person to person, even in the same family.
The early symptoms include:
- Slight, uncontrollable muscular movements
- Short-term memory lapses
- Stumbling and clumsiness
- Lack of concentration
- Changes of mood, sometimes including aggressive or antisocial behaviour
Later on in the illness people experience many different symptoms which may include:
- Involuntary movements
- Difficulty in speech and swallowing
- Weight loss
- Mood swings
Our dedicated are available to help you make a choice that will help you and your loved one to manage the various complex issues associate with having cerebral palsy. Get in touch with our dedicated and friendly team and one of our handpicked member of staff will be happy to talk you through the various options.
What does Verity Healthcare offer?
At Verity healthcare, we understand that supporting a loved one with Huntington’s disease and especially dealing with the difficulties associated with progressive nature of the symptoms, can be extremely challenging and upsetting. That’s why our care staff have been fully trained and supported to develop unique skills to effectively support people with Huntington’s disease. Our staff have been specially trained support not only patients but also family members to cope with stress associated with looking after loved ones who have Huntington’s disease.
We work with clients and their relatives to devise a support and care plan that revolves around the specific needs of the client. We empower and enable you to remain in the comfort of your own home and continue to be with your loved ones and participate in activities you enjoy with dignity and independence.
Our team of staff are specifically trained to provide expert support to individuals living with Huntington’s disease. We offer a wide range of assistance such as, personal care, help around the house and medication administration. Our staff are trained to support you with preparing nutritious meals and to with other daily tasks such as toileting, bathing and continence care. We support individuals to carry out all the practical care tasks with empathy and discretion.
Our support assistants offer emotional support and companionship, to both the patient and their loved ones. They will support you and your loved ones to make the right choices the symptoms of Huntington’s disease begin to worsen over time. They are able to support with kindness and knowledge of using PEG or NG feeding tubes or tracheostomy care – always keeping your loved one’s specific needs and preferences at the heart of everything we do. Where necessary, we signpost you to experienced occupational therapists to help with common issues such as muscular discomfort and difficulty swallowing associated with the disease. This is to ensure that you are comfortable and managing your symptoms.
If you require prize-winning Huntington’s care at home, contact our dedicated team today to discuss the various options available.
Exceptional Huntington’s disease care
At Verity Healthcare, we understand that it can be difficult to choose the most appropriate support for you or a loved one diagnosed with Huntington’s disease. It is for this reason that we have set up a specialist team of care workers and registered nurses who are exceptionally trained to offer extraordinary support so you can manage essential day-to-day activities very well.
This gives family and friends the opportunity to spend more quality time with their loved one, creating special memories and boosting the patient’s morale.
Our specialist team of care workers and registered nurses are exceptionally trained to offer extraordinary support so you can manage essential day-to-day activities very well. We can support you with short-term care where our care staff will visit you for period of 30mins or more or as live-in carers where they will provide round-the-clock services. Our cerebral palsy care team will support you with:
- Personal care including skin care, washing, dressing and toileting to keep high levels of hygiene to prevent infection
- Nutrition management such as food preparation, access to appropriate drinks to keep you healthy and hydrated
- Companionship which will include going to the theatre, watching movies, out for dinner, chatting through photo albums, engage in social activities, keeping up hobbies to keep you motivated and keep up with events and routines
- Housekeeping including household chores such as cooking, cleaning, shopping and laundry to keep home environment clean and prevent infection
- Life skills development – supporting with learning new skills, education and work aspirations
- Language development – help with any needed language development e.g. sign language
- Medicine management – assistance with taking the right medicines as prescribed to improve health and wellbeing
- Encouragement to relearn skills and do things for yourself to maintain your independence
- Medical support, such as arranging medical and hospital appointments, dressing wounds and supporting with bowel, stoma and catheter care
- Running errands such as collecting prescriptions or helping with the food shopping
Our friendly, highly experienced, team members understand that it’s natural to have many questions and reservations when deciding whether to receive support at home. We’re always on hand to explain all aspects of the Huntington’s disease care and support we offer, and provide impartial advice and information.
Find out more about Huntington’s disease, visit Huntington’s Disease Association.
“Luciana was diagnosed with Huntington’s Disease over 7 years ago. He started receiving support from Verity Healthcare specialist team 6 years ago. Luciana says: “The best thing that ever happened to me was to have this wonderful people supporting. I must confessed I was afraid when I was diagnosed. But these lovely people have made life so much easier for me. The joy they spread in my home has helped me to improve instead of deteriorating. Merely, saying thank you these beautiful ladies is not enough””
– Lucia, Verity Healthcare live-in carer.
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We’re committed to excellence and to deliver essential homecare services to our clients as the first choice
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Learn what our staff and clients say about working with Verity Healthcare. You’ll be encouraged.